The NIC Collaboration Hub2024-03-29T14:00:44Zhttps://hub.nic-us.org/groups/project-unify/resources/feed/allUpdated User Story Cataloguehttps://hub.nic-us.org/groups/project-unify/resources/updated-user-story-catalogue2023-02-02T15:52:17.000Z2023-02-02T15:52:17.000ZDaniel Steinhttps://hub.nic-us.org/members/DanielStein<div><p><a href="https://docs.google.com/document/d/13oZfyZr8ceLWiHjq2SHe5ne5j8k5rFlh0cSQjsAFY-E/edit#heading=h.6hl1nqp2w3ix" target="_blank">User Story Catalogue</a></p></div>White House Office of Science & Technology Policy: Community Connected Health Stakeholder Engagement Summary Reporthttps://hub.nic-us.org/groups/project-unify/resources/white-house-office-of-science-technology-policy-community-connect2022-05-12T13:20:05.000Z2022-05-12T13:20:05.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>From January through April 2022, the Office of Science and Technology Policy (OSTP), in partnership with the Health Resources & Services Administration (HRSA), solicited stakeholder input on the proposed vision for Community Connected Health through a Request for Information (RFI) and three formal roundtables. The RFI was open to the public and published on January 5, 2022 with an extended response period until March 31, 2022 to allow for broad stakeholder input. The roundtables were composed of plenary and breakout sessions. The roundtable plenary sessions were open to the public, during which speakers provided additional context for the RFI as well as real-time question submission and response. The roundtable breakout sessions provided opportunities for more expansive discussions with invited community health stakeholders on specific themes. Additionally, stakeholders provided individual input via meetings directly with OSTP staff. This is a summary document of the major themes that arose across all engagements.</p>
<p><a href="{{#staticFileLink}}10482135067,original{{/staticFileLink}}" target="_blank">View the report >></a></p></div>The Common Impact Data Standard: An Ontology for Representing Impacthttps://hub.nic-us.org/groups/project-unify/resources/the-common-impact-data-standard-an-ontology-for-representing-impa2022-03-04T20:10:14.000Z2022-03-04T20:10:14.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>CIDS is a standardized way to represent a SPO’s impact model (i.e., definition) and the impact (i.e., effect) their implementation has on its stakeholders. This creates a uniform representation while allowing each SPO flexibility to design an impact model that is most relevant to it. The benefits of this flexible standard are:</p>
<ol>
<li>Better impact: Each organization makes some difference, but their most impactful stories are when the data can be connected and aggregated. A common impact data standard allows networks to pool data, to see impact and use the data to improve impact.</li>
<li>Sophisticated analysis. CIDS makes it possible for researchers to integrate their data thereby enabling a plethora of analysis, e.g., longitudinal and transversal studies, using a variety of methods. This may lead to better understandings of needs, and a better understanding of what works.</li>
<li>More autonomy. Donors, investors, government agencies are increasingly aware that old impact reporting techniques have been a burden to grantees and investors. A common impact data model provides funders the standard formats that they need to understand portfolio-level impacts, while leaving SPOs the autonomy to measure impact in ways that best-fit the SPOs own data needs.</li>
<li>Less paperwork: A common impact data model allows impact data to be represented in ways that can accommodate the reporting needs of diverse funders. SPOs a common impact data model will need to do less custom reporting.</li>
<li>Greater visibility: Enable the tagging of an organization’s content on the internet making it easier for search engine users to find impact content on the web.</li>
<li>More versatility: A common data model makes it easier for organizations to connect their impact measurement with other measurement standards, such as the UN SDG Global Indicator Framework, IRIS+ and the International Aid Transparency Initiative (IATI) Standard.</li>
</ol>
<p><a href="{{#staticFileLink}}10170040892,original{{/staticFileLink}}" target="_blank">View the report >></a></p></div>ACF: Confidentiality Toolkithttps://hub.nic-us.org/groups/project-unify/resources/acf-confidentiality-toolkit2021-11-09T18:11:04.000Z2021-11-09T18:11:04.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>Confidentiality Toolkit Preface:</p>
<p>In issuing this updated Confidentiality Toolkit to support state and local data sharing efforts, we hope to bring greater clarity to the rules governing confidentiality in programs administered by the Administration for Children and Families (ACF) and certain related programs. The toolkit provides guidance, including examples, for addressing confidentiality requirements in a manner fully consistent with governing laws and underlying policies.</p>
<p>Human services agencies have recognized for decades that coordination and collaboration across multiple dimensions of related services can enable more effective outcomes for children, families, and individuals with multiple needs. Along with direct improvements to the delivery of services, data sharing allows federal, state, and local agencies to conduct the research and analysis needed to address existing and emerging challenges. For example, access to high quality data linked across programs and sectors will allow government agencies to develop an informed response to the devastation caused by the COVID-19 pandemic.</p>
<p>Many government entities have created data warehouses to support operations and/or improve the decision-making process. They have met the technological challenges associated with collecting, standardizing, linking, storing, and accessing data safely and securely. However, having the ability to securely and accurately link data across programs is not a panacea. Improved information sharing is not simply a technological challenge, but also has legal and societal constraints. Individual programs often have statutorily established confidentiality requirements to protect the privacy and dignity of individuals and families in need of assistance or services. The confidentiality provisions serve important public purposes. In some cases, confidentiality provisions may save lives, as in domestic violence programs, for example. In other cases, they are grounded in the recognition that a family in need of a particular service should not be compelled to share highly personal and private information across a full range of government agencies as a condition of receiving help.</p>
<p>In spite of their vital public purposes, the complexities resulting from multiple varying confidentiality provisions can be a significant impediment to state and local efforts to share data. The reconciliation of privacy requirements raises a number of questions that must be addressed, including whether a particular provision is federal, state, or local; whether it is a requirement or just a long-standing practice; whether there are exceptions; and if confidentiality can be waived through consent, how that consent can be effectuated.</p>
<p>We recognize that this Confidentiality Toolkit does not address all programs and every potential issue that may arise related to confidentiality and data privacy, but we hope that it will be helpful in advancing state and local efforts to improve human services delivery and outcomes through appropriate and responsible data sharing.</p>
<p><a href="https://www.acf.hhs.gov/sites/default/files/documents/opre/opre-confidentiality-toolkit-oct-2021_0.pdf" target="_blank">View the toolkit >></a></p></div>Arlington County Shared Authorization to Use and Exchange Informationhttps://hub.nic-us.org/groups/project-unify/resources/arlington-county-shared-authorization-to-use-and-exchange-informa2021-11-04T00:40:56.000Z2021-11-04T00:40:56.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>Arlington County's universal release of information form.</p>
<p><a href="{{#staticFileLink}}9765286281,original{{/staticFileLink}}" target="_blank">View the form >></a></p></div>Layered Schemashttps://hub.nic-us.org/groups/project-unify/resources/layered-schemas2021-10-16T23:17:35.000Z2021-10-16T23:17:35.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p><a href="{{#staticFileLink}}9707920098,original{{/staticFileLink}}">Layered Schemas (Project Unify 10152021).pdf</a></p></div>211 San Diego Presentation: Sharing Information is Easier Than You Thinkhttps://hub.nic-us.org/groups/project-unify/resources/211-san-diego-presentation-sharing-information-is-easier-than-you2021-10-04T14:55:56.000Z2021-10-04T14:55:56.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Sharing Information Is Easier Than You Think presentation by Elaine Scordakis and Jennifer Scwartz.</p>
<p><a href="{{#staticFileLink}}9641524494,original{{/staticFileLink}}" target="_blank">View the presentation slides >></a></p></div>ONC TEFCA: Recognized Coordinating Entity Presentationhttps://hub.nic-us.org/groups/project-unify/resources/onc-tefca-recognized-coordinating-entity-presentation2021-09-02T13:39:27.000Z2021-09-02T13:39:27.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Mariann Yeager provided Project Unify with the latest TEFCA overview on September 1, 2021.</p>
<p><a href="{{#staticFileLink}}9523343672,original{{/staticFileLink}}" target="_blank">View presentation >></a></p></div>Self-Sovereign Identity in Healthcarehttps://hub.nic-us.org/groups/project-unify/resources/self-sovereign-identity-in-healthcare2021-08-25T17:24:01.000Z2021-08-25T17:24:01.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>Lumedic's presentation slides, "Self-Sovereign Identity in Healthcare." Presentation was on August 18 at the Project Unify meeting.</p>
<p><a href="{{#staticFileLink}}9475670277,original{{/staticFileLink}}" target="_blank">View the slides >></a></p></div>Podcast Series - Community Information Exchangeshttps://hub.nic-us.org/groups/project-unify/resources/podcast-series-community-information-exchanges2021-07-29T23:39:22.000Z2021-07-29T23:39:22.000ZStacy Shwartz Olagundoyehttps://hub.nic-us.org/members/StacyShwartzOlagundoye<div><p>Podcast series - Community Information Exchanges: Building with Community to Advance Health Equity, developed by Community Information Exchange, Health Leads, Redwood Community Health Coation, and United Way Bay Area.<a href="{{#staticFileLink}}9329804083,original{{/staticFileLink}}">Podcast Series - Community Information Exchanges.pdf</a></p></div>Privacy and Consent Utility 2 Page Overviewhttps://hub.nic-us.org/groups/project-unify/resources/privacy-and-consent-utility-2-page-overview2021-06-23T16:43:09.000Z2021-06-23T16:43:09.000ZDaniel Steinhttps://hub.nic-us.org/members/DanielStein<div><p>Here is a two page overview of the Consent Utility model: <a href="{{#staticFileLink}}9132416670,original{{/staticFileLink}}">C2SU Overview 3.8.21.pdf</a></p>
<p> </p>
<p>More information on Project Unify Group: <a href="http://https//hub.nic-us.org/groups/project-unify" target="_blank">http://https://hub.nic-us.org/groups/project-unify</a></p></div>ONC Project: Advancing SDoH Health IT Enabled Tools and Data Interoperability Homehttps://hub.nic-us.org/groups/project-unify/resources/advancing-sdoh-health-it-enabled-tools-and-data-interoperability-2021-05-29T13:24:20.000Z2021-05-29T13:24:20.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Advancing SDoH Health IT Enabled Tools and Data Interoperability: eCDS and Data Tagging Project Overview:</p>
<p>According to the World Health Organization, social determinants of health (SDoH) are the conditions in which people are born, grow, work, live, and age, and the broader set of forces and systems shaping the conditions of daily life. The health care industry increasingly recognizes the importance and impact of these conditions on individual and community health and care.</p>
<p>Two important existing and emerging tools for advancing the use of SDoH data in clinical and community settings are data tagging and electronic clinical decision support (eCDS). Data tagging can help enable the movement of sensitive SDoH data. eCDS can enable the integration of SDoH decision-making data into clinical workflows, as supported by specialty practice guidelines, making it more likely that SDoH information will be utilized as a part of care delivery.</p>
<p>This ONC-led project aims to advance the interoperability of SDoH data by supporting stakeholder efforts to conduct data tagging and by assessing the feasibility of developing eCDS that incorporates SDoH data.</p>
<p><a href="https://oncprojectracking.healthit.gov/wiki/display/ASHIETDI/Advancing+SDoH+Health+IT+Enabled+Tools+and+Data+Interoperability+Home" target="_blank">View the site >></a></p>
<p><a href="{{#staticFileLink}}9019245658,original{{/staticFileLink}}" target="_blank">View the slides from the Part 1 meeting >></a></p></div>XML Schema to Ontology Conversion Resourceshttps://hub.nic-us.org/groups/project-unify/resources/xml-schema-to-ontology-conversion-resources2021-05-27T14:48:41.000Z2021-05-27T14:48:41.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p>"We also looked into tools for XSD to OWL transformation. Most tools make certain assumptions on XSD modelling approaches and if yours is modelled differently then a lot of "post-processing" is necessary. <br /><br />One free option you could try is ontmalizer <a href="https://github.com/srdc/ontmalizer" target="_blank">https://github.com/srdc/ontmalizer</a>. Then there is the commercial topbraid composer <a href="https://www.topquadrant.com/products/topbraid-composer/" target="_blank">https://www.topquadrant.com/products/topbraid-composer/</a> which can also do this conversion. Last time I checked they had a trial version."</p></div>Recent ontology mapping scholarly articlehttps://hub.nic-us.org/groups/project-unify/resources/recent-ontology-mapping-scholarly-article2021-05-19T13:50:44.000Z2021-05-19T13:50:44.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p><a href="https://arxiv.org/pdf/2105.05596.pdf" target="_blank">Unsupervised Knowledge Graph Alignment by Probabilistic Reasoning and Semantic Embedding</a></p></div>The Enterprise Ontologyhttps://hub.nic-us.org/groups/project-unify/resources/the-enterprise-ontology2021-05-13T13:15:33.000Z2021-05-13T13:15:33.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p>An excellent overview of the main objectives when building ontologies. Very simply written, in plain English.</p><p><a href="https://tdan.com/the-enterprise-ontology/5016">https://tdan.com/the-enterprise-ontology/5016</a></p></div>Project Unify Presentation at NHSDC Conference: Confidential, Targeted Community Exchanges - Alerts for COVID-19 and Beyond: using HMIS in standards-based real-time community exchangeshttps://hub.nic-us.org/groups/project-unify/resources/confidential-targeted-community-exchanges-alerts-for-covid-19-and2021-05-05T16:09:30.000Z2021-05-05T16:09:30.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Project Unify presentation at the NHSDC Conference.</p>
<p><a href="{{#staticFileLink}}8895730092,original{{/staticFileLink}}" target="_blank">View presentation >></a></p></div>Consent Governance Group Kickoff Meeting Slideshttps://hub.nic-us.org/groups/project-unify/resources/consent-governance-group-kickoff-meeting-slides2021-04-22T17:06:21.000Z2021-04-22T17:06:21.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>The Consent Governance workgroup met on April 19 to discuss objectives and expected outcomes.</p>
<p><a href="{{#staticFileLink}}8823910264,original{{/staticFileLink}}" target="_blank">View presentation >></a></p></div>Homeless Rehab COVID Dataflowhttps://hub.nic-us.org/groups/project-unify/resources/homeless-rehab-covid-dataflow2021-04-07T14:34:21.000Z2021-04-07T14:34:21.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>In the Homeless Rehab COVID demo we consider the challenges of Sarah Thomson, who as a result of an auto accident while under the influence of opioids has lost her license, her car is totaled, she lost her job delivering groceries, was evicted from her apartment, and her two children have been put in foster care with her mother. The court refers her to a homeless rehabilitation program to enable her to start rebuilding her life. A requirement of entering the facility is she must take a COVID survey, which stores a condition in her patient record that she is suspected of having COVID. But she has elected to exercise her 42 CFR part 2 rights to not have her substance use disorder shared with anyone. So, there is no way for the rehab center to retrieve the status of her COVID survey without revealing that Sarah has a substance use disorder. This COVID alerting demo involves a COVID survey app, an Electronic Health Records System (EHR), a Community Infectious Disease Alerts Service (CIDAS), a Homeless Management Information System, and a Rehab Shelter Management app. The COVID app uses the FHIR Questionnaire/QuestionnaireResponse Resources standard to create a clinical record Condition of Suspected COVID in Sarah’s medical record in the EHR. The CIDAS uses the FHIR Subscription API to learn of Sarah’s infectious disease condition from the EHR. The HMIS uses a FHIR Subscription API to subscribe to COVID alerts from the CIDAS on behalf of the Rehab Shelter Management app.</p>
<p><a href="{{#staticFileLink}}8769555257,original{{/staticFileLink}}"><img class="align-center" src="{{#staticFileLink}}8769555257,RESIZE_710x{{/staticFileLink}}" width="710" alt="8769555257?profile=RESIZE_710x" /></a></p></div>Single Parent Social Determinants of Health (SDoH) Dataflowhttps://hub.nic-us.org/groups/project-unify/resources/single-parent-social-determinants-of-health-sdoh-dataflow2021-04-07T14:32:30.000Z2021-04-07T14:32:30.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>In the Single-parent SDOH demo we consider the challenges of Sarah Thomson, who is now a single mother of two children. This Food Insecurity demo involves a PRAPARE survey app, an Electronic Health Records System and a Case Management Referral System. The PRAPARE app uses the FHIR Questionnaire/QuestionnaireResponse Resources standard to create a clinical record Condition of Food Insecurity in Sarah’s medical record. The Case Management Referral System uses the FHIR Subscription service to learn of Sarah’s food insecurity condition, and then could use FHIR or 360X electronic referral standards, or a simple electronic fax or print and post to referral Sarah for for WIC and Child Care benefits to the appropriate community based organization or agency.</p>
<p><a href="{{#staticFileLink}}8769550875,original{{/staticFileLink}}"><img class="align-center" src="{{#staticFileLink}}8769550875,RESIZE_710x{{/staticFileLink}}" width="710" alt="8769550875?profile=RESIZE_710x" /></a></p></div>Homeless / Case Management Social Determinants of Health Dataflowhttps://hub.nic-us.org/groups/project-unify/resources/homeless-case-management-social-determinants-of-health-dataflow2021-04-07T14:24:34.000Z2021-04-07T14:24:34.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>In the Homeless SDOH demo we consider the challenges of John Thomson, who is now homeless in NYC. This Chronically Homeless/Housing Insecurity demo involves a Shelter Management app, a Homeless Management Information System and a Case Management Referral System. The shelter management app uses a HUD HMIS standard API over HTTPS. The Case Management Referral System uses a publish and subscribe API similar to the FHIR Subscription service to learn of John’s housing insecurity issues, and then could use FHIR or 360X electronic referral standards, or a simple electronic fax or print and post to get a referral for housing to the appropriate community based organization or agency.</p>
<p style="text-align:center;"><a href="{{#staticFileLink}}8769533890,original{{/staticFileLink}}"><img src="{{#staticFileLink}}8769533890,RESIZE_710x{{/staticFileLink}}" width="710" alt="8769533890?profile=RESIZE_710x" /></a></p></div>Integrated Care for Kids: Working with Project Unify To Connect Health and Human Services, Improve Child and Family Outcomeshttps://hub.nic-us.org/groups/project-unify/resources/integrated-care-for-kids-working-with-project-unify-to-connect-he2021-03-31T14:38:44.000Z2021-03-31T14:38:44.000ZHub Adminhttps://hub.nic-us.org/members/NIC<div><p>Stewards of Change Institute is working with the federally funded Integrated Care for Kids (InCK) site in New Jersey to expedite that initiative’s work. Specifically, SOCI is working to develop, test and implement an innovative technical proof-of-concept solution/blueprint called Project Unify. Unify is designed to enable and accelerate the exchange of information across several systems and domains with which InCK interacts. Unify’s fundamental goal is to create an open-source, open-data and open-standards model that can be replicated and customized across the country.</p>
<p><a href="{{#staticFileLink}}8739891871,original{{/staticFileLink}}" target="_blank">Read the Two-Pager >></a></p>
<p> </p></div>HIPAA or FERPA? A Primer on Sharing School Health Information in Californiahttps://hub.nic-us.org/groups/project-unify/resources/hipaa-or-ferpa-a-primer-on-sharing-school-health-information-in-c2021-03-04T16:06:34.000Z2021-03-04T16:06:34.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Introduction:</p>
<p>School-based health programs and providers bring a range of needed health care services to a school campus. These programs also provide an exciting opportunity to increase health care access for youth and improve care coordination and collaboration among providers and schools.</p>
<p>When developing school-based health programs, there are several legal considerations that the health provider(s) and education agencies should address early on. One of the most important is determining which confidentiality laws control access to and disclosure of the school-based health programs’ health care information. While there may be multiple laws to consider, the first question to address is whether the program’s information is subject to the federal Family Educational Rights and Privacy Act (FERPA) or the federal Health Insurance Portability and Accountability Act of<br />1996 (HIPAA).</p>
<p>Whether HIPAA or FERPA applies and how those laws interact with state confidentiality law will impact schoolbased health service operations in large and small ways:</p>
<ul>
<li>from framing how school staff and health<br />providers collaborate and share information;</li>
<li>to shaping policies about how to deal with<br />suicide threats and other emergencies;</li>
<li>to determining the content of required notices and consent forms<br />and other administrative issues.</li>
</ul>
<p>This Primer provides an overview of HIPAA, FERPA, and California state law. The goal is to provide sufficient information for health care providers and schools to be able to start important conversations with legal counsel about which law applies to their services.</p>
<p><a href="{{#staticFileLink}}8631390670,original{{/staticFileLink}}" target="_blank">View the report >></a></p></div>InCK & NIC Presentation at 2020 National Opioid Summit: Tackling the COVID-19/Opioid Twindemic: The Urgent Need to Accelerate Responsible Data Sharing across the Spectrum of Health and Human Serviceshttps://hub.nic-us.org/groups/project-unify/resources/tackling-the-covid-19-opioid-twindemic-the-urgent-need-to-acceler2020-12-09T19:24:40.000Z2020-12-09T19:24:40.000ZAmanda Taylorhttps://hub.nic-us.org/members/AmandaTaylor<div><p>Dr. Kristine McCoy and Daniel Stein presented at the 2020 National Opioid Leadership Summit on December 8, 2020. The presentation titled, "Tackling the COVID-19/Opioid Twindemic: The Urgent Need to Accelerate Responsible Data Sharing across the Spectrum of Health and Human Services" was look into how the New Jersey Integrated Care for Kids (InCK) Initiative is breakingdown health and human services silos through a multi-generational approach and technological interoperability. Project InCK is developing a standards-based approach for enhancing information sharing interoperability across a range of programs and domains. </p>
<p><a href="{{#staticFileLink}}8267094882,original{{/staticFileLink}}" target="_blank">View the presentation slides >></a></p></div>Ontology Mapping Emerging Standardhttps://hub.nic-us.org/groups/project-unify/resources/ontology-mapping-emerging-standard2020-08-31T13:55:03.000Z2020-08-31T13:55:03.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p>This provides a way to record similar or exact matches in concepts/terms within two or more different data dictionaries (ontologies). </p><p><br /><a href="https://douroucouli.wordpress.com/2020/08/18/a-simple-standard-for-sharing-mappings/">https://douroucouli.wordpress.com/2020/08/18/a-simple-standard-for-sharing-mappings/</a></p></div>Person Match Workflow Diagramhttps://hub.nic-us.org/groups/project-unify/resources/person-match-workflow-diagram2020-08-08T14:09:35.000Z2020-08-08T14:09:35.000ZEric Jahnhttps://hub.nic-us.org/members/EricJahn<div><p><a href="{{#staticFileLink}}7352814087,RESIZE_930x{{/staticFileLink}}"><img class="align-full" src="{{#staticFileLink}}7352814087,RESIZE_710x{{/staticFileLink}}" alt="7352814087?profile=RESIZE_710x" width="710" /></a></p><p>see: <a href="https://www.springer.com/gp/book/9783642311635">https://www.springer.com/gp/book/9783642311635</a></p><p>also referenced in: <a href="https://hdsr.mitpress.mit.edu/pub/8fm8lo1e/release/2">https://hdsr.mitpress.mit.edu/pub/8fm8lo1e/release/2</a></p></div>The Business Case for Semantic Web Ontology & Knowledge Graphhttps://hub.nic-us.org/groups/project-unify/resources/the-business-case-for-semantic-web-ontology-knowledge-graph2020-07-15T19:44:03.000Z2020-07-15T19:44:03.000ZBrian D. Handspickerhttps://hub.nic-us.org/members/BrianDHandspicker<div><p>Mark Wallace of Semantic Arts, and Thomas Cook of Cambridge Semantics, discuss the benefits of building a Semantic Knowledge Graph with Resource Description Framework (RDF) in the following presentation: <a href="https://cambridgesemantics.wistia.com/medias/zgbg5h4dzc">The Business Case for Semantic Web Ontology & Knowledge Graph</a></p></div>Security Fundamentalshttps://hub.nic-us.org/groups/project-unify/resources/security-fundamentals2020-06-29T23:47:35.000Z2020-06-29T23:47:35.000ZBrian D. Handspickerhttps://hub.nic-us.org/members/BrianDHandspicker<div><p><a href="{{#staticFileLink}}6446150491,original{{/staticFileLink}}">Information Exchange Security Fundamentals</a></p></div>Consent2Share: Sharing Behavioral Health Data over an HIEhttps://hub.nic-us.org/groups/project-unify/resources/consent2share-sharing-behavioral-health-data-over-an-hie2020-06-29T23:43:32.000Z2020-06-29T23:43:32.000ZBrian D. Handspickerhttps://hub.nic-us.org/members/BrianDHandspicker<div><p><a href="{{#staticFileLink}}6446068856,original{{/staticFileLink}}">Consent2Share: Sharing Behavioral Health Data over an HIE</a></p></div>Project Unify Privacy and Confidentiality Overviewhttps://hub.nic-us.org/groups/project-unify/resources/project-unify-privacy-and-confidentiality-overview2020-06-29T23:37:33.000Z2020-06-29T23:37:33.000ZBrian D. Handspickerhttps://hub.nic-us.org/members/BrianDHandspicker<div><p><a href="{{#staticFileLink}}6445932458,original{{/staticFileLink}}">Project Unify Privacy and Confidentiality Overview</a></p></div>2019 MITATAC Adult Opioid Detailed User Storyhttps://hub.nic-us.org/groups/project-unify/resources/2019-mitatac-adult-opioid-detailed-user-story2020-06-29T22:13:36.000Z2020-06-29T22:13:36.000ZBrian D. Handspickerhttps://hub.nic-us.org/members/BrianDHandspicker<div><p> </p><p>Sarah Thomson is 27 years old, divorced mother of Billy Thomson, age seven, who live together in a tiny apartment in a run-down, non-rent controlled building in Temperance, MI. Sarah has asthma and an opioid addiction, for which she is currently in Medication Assisted Therapy (MAT), and which also caused her to develop Chronic Kidney Disease (CKD). She is 6 months pregnant, and has several nonmedical issues with food, housing, and transportation. </p><p>Billy was born with Neonatal Abstinence Syndrome (NAS), and as a preschooler watched far too frequently as Emergency Medical Services came to the house to resuscitate his mother. In spite of all these Adverse Childhood Events, he has never been screened or diagnosed for any developmental disabilities, even though he has been held back to repeat first grade.</p><p>When Sarah was married and had health insurance through her husband’s employer, Dr. Carla Sanchez, Sarah’s Primary Care Physician, worked with Sarah to establish an integrated care team for her and Billy. Sarah’s Care team consists of</p><p>Dr. Sanchez and her office’s clinical staff</p><p>Dr. Jordan Emmett, an Ohio-based MAT Treatment provider</p><p>Billy’s care team consists of</p><p>Dr. Amy Taylor, a Pediatrician in Dr. Sanchez’s practice </p><p>Florence Whitaker RN, the School nurse at Billy’s school in the Monroe County Independent School District (added when Billy entered first grade)</p><p>Sarah schedules an appointment for her annual well visit with her primary care physician, At the appointed time, Sarah arrives at the office of Dr. Sanchez. While waiting to see Dr. Sanchez in the exam room, Samir Anand LPN, one of the practice’s clinical staff, collects Sarah’s vital signs and asks Sarah to answer a few questions from a social risk screening tool the practice is using. Samir explains Dr. Sanchez’ practice is screening all patients as part of their annual well visit exam. Samir provides Sarah with a mobile tablet with the electronic questionnaire. Sarah answers the questions and returns the tablet to Samir. Samir uploads the completed questionnaire into the EHR.</p><p>Dr. Sanchez enters the exam room and begins the consult inquiring how Sarah has been since their last visit. Sarah shares that over the past year the family has experienced significant life changes including Sarah separating from her husband, who is not paying child support, and on top of it she’s lost her health insurance. She is struggling living off one salary to pay for rent, childcare, and food. She feels overwhelmed and guilty that she comes home too tired to do anything but get Billy fed and ready for the next day.</p><p>Dr. Sanchez uses her EHR to review the results of the social risk screening and history for Sarah. She examines Sarah and notes Sarah is gaining weight and her asthma is worse. Sarah acknowledges she saves money by buying low-cost foods such as macaroni and cheese and pizza. She rarely buys fruits or vegetables because they are more expensive and the neighborhood in which she lives is considered a food desert, i.e. Sarah has to travel a long way to find a grocery store that sells fresh vegetables and healthy food options.</p><p>She also notes that she cannot always afford medications so she spaces out her asthma controller medication to every other day instead of every day. Dr. Sanchez inquires whether Sarah has talked to her landlord about mold or another allergen remediation. Sarah confirms she has not. Dr. Sanchez tells Sarah the screening responses indicate distinct risk around food insecurity, housing instability and quality, and transportation access. Sarah confirms she needs help with these are three areas. To address the asthma concern, Dr. Sanchez and Sarah identify goals to reduce asthma triggers in the home and minimize the cost of medications. Dr. Sanchez reviews the cost of Sarah’s asthma controller medication and determines an equally effective, lower cost medication is available. She also confirms Sarah is eligible to receive an asthma home visit. Dr. Sanchez places an order for a new asthma medication and submits an electronic request for an asthma home visit to assess for asthma triggers.</p><p>To address the three social risk factors, Dr. Sanchez and Sarah identify goals to 1) find more affordable housing solutions and healthier food options; and 2) find more efficient transportation options. They discuss an action plan to address the goals that involves Sarah working with a care coordinator to identify and secure available services and supports. Dr. Sanchez refers Sarah to Reeza Shah RN, a care coordinator in Dr. Sanchez’s practice who can help connect Sarah to available resources, either those available in-house or those available in the community. Dr. Sanchez adds Reeza to Sarah’s integrated Care team. </p><p>Samir returns to the exam room and works with Sarah to find another date/time to schedule a telephone consultation with Reeza. Samir schedules the appointment with Reeza for the following week and a follow-up appointment with Dr. Sanchez within three months of the appointment with Reeza.</p><p>The following week, Sarah meets with Reeza. Reeza has reviewed Sarah’s care plan and identified several resources available to support the care plan goals. Reeza and Sarah use the Michigan Assistance and Referral Service (MARS), and confer with Ellen Davis, an Eligibility Specialist in Michigan Department of Health and Human Services, to determine Sarah’s eligibility for Michigan Medicaid’s Healthy Michigan, Healthy Kids, Maternity Outpatient Medical Services, SNAP benefits and WIC services. Reeza also contacts Michael Frank, an asthma home-visit provider, to arrange for an asthma site visit.</p><p>Michael contacts Sarah by phone to schedule the asthma site visit. Michael conducts the assessment and discovers there is slight mold in the apartment that is aggravating Sarah’s asthma. Michael emails Sarah, Dr. Sanchez, and Reeza a copy of the home-visit report and recommends Sarah be referred to a housing coordinator. Reeza reviews Michael’s report and uploads into the EHR. Within 1 week, Reeza emails Sarah with the names of two housing coordinators. </p><p>When Sarah has her follow-up visit with Dr. Sanchez, she documents the agreed upon health concerns, patient goals, action plan, and referral (planned intervention) in the care plan within the EHR.</p><p>One day Billy’s First Grade teacher, notices that Billy has come to school in a very drowsy condition, falling asleep several times at breakfast and in early morning classes, and sends Billy to see Florence Whitaker, the School Nurse. </p><p>Florence begins to take Billy’s vital signs and record them in the School’s EMR system. While she is talking to Billy she happens to notice what looks like an empty prescription bottle in his book bag – when she examines it, she finds it is from his mother’s buprenorphine prescription. She immediately suspects that this is the cause for the drowsiness and now opens a triage instrument to ask Billy some questions and record her observations of her behavioral concerns. The Triage tool guidance suggests an intervention of notifying the School Assistance Team, which includes besides Florence, the Principal, and Gerald Brown LSW, a social worker in the Michigan Department of Health and Human Services (MDHHS) Monroe County office, who in turn calls in the MDHHS Child Protective services unit.</p><p>Billy gets placed in a Foster home and Gerald works to get Billy enrolled in a Home and Community Based Services (HCBS) Medicaid Waiver program for Children with Substance Use Disorder. Gerald also works with Lisa Jones JD, Billy’s court appointed Lawyer-Guardian Ad Litem (LGAL), and Dr. Amy Taylor, Billy’s pediatrician, to add Dr. Peter Gutierrez of the Monroe County Mental Health Authority to Billy’s Care Team, and use Consent2Share to Consent to share medical information between Dr. Taylor, Dr. Gutierrez and Nurse Whitaker.</p><p>Dr. Gutierrez performs an assessment and finds Billy has several developmental, behavioral and health care needs, which are recorded in the plan of care which are recorded as an observation and documented using the Subjective, Objective Assessment and Plan (SOAP) note. The Plan of care includes various interventions, including counseling, an Individualized Education Plan (IEP), and screenings for other developmental factors such as Audiology, Vision, etc. In addition, a Machine Learning predictive model used by Dr. Sanchez’s practice has picked out Billy’s situation as high risk for developing asthma, high risk for developing Severe Emotional Disorder and Sarah’s expected child as high risk of being born with NAS.</p><p>Dr. Sanchez makes a note to discuss the NAS issue with Sarah at her next appointment. </p><p>Dr. Taylor sends a note to Gerald about Billy’s risk, who in turn communicates that with LGAL Jones.</p><p>Florence, Gerald, Dr. Taylor and Dr. Guitierrez all collaborate to deliver on this plan of care, and share the results via their respective devices. Mrs. Jones can also be informed of Billy’s progress. Ultimately Lisa and Gerald will work on getting Billy reunified with Sarah, at which point she can follow along on this progress as well.</p><p> </p></div>