Resources

National Commission to Transform Public Health Data Systems

This paper explains the Commission, the foundational white papers, defines terms, describes the Commission approach, and outlines the guiding principles of a modern, equity-oriented public health data system and what that system does. This includes a

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Protected Health Information Consent Tool

In 2019, The Michigan Health Endowment commissioned Altarum to develop the PHI Consent Tool to help providers navigate the complexity of consent and confidentiality regulations around the release and exchange of protected health information (PHI).

Th

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Data Sharing and the Law: Deep Dive on Consent

Data sharing initiatives can be hyperlocal, but they are all subject to the same federal laws regarding privacy and consent. Working through Data Sharing Consent or Release of Information forms can be almost frightening in this highly regulated lands

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Procuring Interoperability: Achieving High-Quality, Connected, and Person-Centered Care

Realizing the promise of digital technology will depend on the ability to share information across time and space from multiple devices, sources, systems, and organizations. The major barrier to progress is not technical; rather, it is in the failure

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Overcoming Data-Sharing Challenges in the Opioid Epidemic: Integrating Substance Use Disorder Treatment in Primary Care

In response to the opioid epidemic, states and the federal government have sought to increase the availability of substance use disorder (SUD) treatment. Through medication-assisted treatment (MAT) programs and other efforts, primary care practices h

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DASH Bright Spot: A Legal Approach to Sharing Health and Education Data

Data sharing partnerships between health and education sectors can help both parties work toward a common vision of improving students’ well-being. Although the Family Educational Rights Privacy Act (FERPA) can sometimes discourage communities from t

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Confidentiality Toolkit: A resource tool from the ACF Interoperability Initatiative

ACF Interoperability Initiative Project; a collection of collaborative, interdisciplinary information technology projects designed to promote horizontal integration, facilitate shared services, and improve the landscape of systems supporting human se

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Data-Sharing Toolkit for Communities: How to Leverage Community Relationships While Protecting Student Privacy

The purpose of this tool kit is to inform civic and community leaders who wish to use shared data to improve academic and life outcomes for students while protecting student privacy. A key success factor in doing this well is understanding the Family

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Joint Guidance on the Application of the Family Educational Rights and Privacy Act (FERPA) And the Health Insurance Portability and Accountability Act of 1996 (HIPAA) To Student Health Records

(Updated from the first issue November 2008) The purpose of this guidance is to explain the relationship between the Family Educational Rights and Privacy Act (FERPA) statute and implementing regulations and the Health Insurance Portability and Accou

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Data Sharing and the Law: Deep Dive on Consent

At the 2018 All In: Data for Community Health National Meeting, attorneys from the Network for Public Health Law explored when consent may or may not be the key to sharing data and how policies and regulations governing health care, education, and be

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