Modernizing Consent Webinar


On December 17, Stewards of Change Institute and the Linux Foundation for Public Health hosted the Modernizing Informed Consent to Advance Health and Equity webinar and provided in-depth review and discussion of the report. View the Slides »»

Project Unify: Advancing Interoperability

Project Unify is an advanced development project of SOCI and NIC. It is exploring the use of existing and draft standards to implement secure information sharing and interoperability across healthcare, behavioral health, human services and other domains (education, child welfare, etc.) that encompass the social determinants of health and well-being.


Highlights

September 7 - UNIFY Meeting

Kiip is a vital document management platform for individuals and the organizations that serve them. Kiip provides a free, safe, and simple way for individuals to keep, manage, and share their personal vital documents while simultaneously offering organizations a portal to have interactive data rooms with their clients enabling faster and higher success applications for benefits and services. Kiip is a Public Benefit Corporation and Certified B Corporation mission-driven to reduce administrative burdens for at-risk, vulnerable, and marginalized populations.

Watch the Recording!

August 17 - UNIFY Meeting

The group discussed key takeaways from the ONC eConsent Discovery Workshop that took place on August 16. 

Watch the Recording!

August 10 - UNIFY Meeting

Courtney Baldridge from U.S. Aging lead this UNIFY session and discussed the data sharing and interoperability challenges facing the aging population in the US. Many of the issues are similar to the ones that UNIFY has been exploring over the past several years, but are even more complex given the healthcare, social care and equity issues facing the aging population.

Watch the Recording!

July 27 - UNIFY Meeting

Brian Handspicker reported on the recent CMS Gravity and National Directory Connectathons with colleagues from MayJuun, Open City Labs and Zane Networks. He also led a discussion regarding the impact and implications for UNIFY and data sharing altogether.

View the Slides
Watch the Recording!

Consent Utility Update

Many people have been on this project and are working towards preparing proof of concept demonstration projects to develop, test and pilot the Consent Utility Concept. Interest, engagement and commitment in this work has been growing steadily among a wide variety individuals, communities and organizations across the U.S. While we are continuing to develop adequate resources to support this ambitious, multi-year program we feel it is an appropriate time to bring folks together to make introductions, provide an update and outline our current plans and timelines.

View the Slides
Watch the Recording!

Latest blog by Daniel Stein

SOCI’s latest publication, "Modernizing Consent To Advance Health and Equity," is the culmination of several months of examination of consent-related policies and practices across the U.S., along with numerous interviews with organizational leaders and subject-matter experts; a review of relevant literature, research and resources; and other activities designed to provide information and insights about consent processes in the U.S. today. The subtitle of the report tells the tale: “A National Scan of Key Technologies, Legal Issues and Promising Practices.”

Read the blog!

Project Unify Webinar

This demo was created for a Project Unify user story in which a client, Sarah Thomson, is scheduled to check into a homeless rehab facility and is required to take a COVID survey. Having exercised her 42 CFR Part 2 rights to not share her substance use disorder with anyone, including her primary care provider, the problem is how to alert the rehab center of her potential COVID infection without revealing her substance use disorder. The Community Infectious Disease Alerts Service is used to aggregate her rehabilitation community with many other communities to share (subscription) her COVID status (with appropriate consent) without compromising her sensitive information.

Learn more!

Opioid Use Disorder Playbook  

Overshadowed by the Covid-19 pandemic, another public health crisis continued to grow in our country last year. Indeed, drug overdose deaths in the U.S. rose by almost 30% in 2020, hitting the highest number (93,000) ever recorded, according to data recently released by the Centers for Disease Control and Prevention. The opioid epidemic has long been a concern – and a priority – for the National Interoperability Collaborative, which is what led us to produce the NIC Opioid Use Disorder Prevention Playbook. This unique publication shines a spotlight on the critical role that prevention should play in addressing the epidemic, including strategies, or “plays,” that communities can replicate or adapt for real-time use. The playbook derives from the efforts by practitioners, researchers and policy-makers to “get upstream” of this national disaster, in addition to providing treatment and saving lives.

View the Playbook

National Action Agenda Symposium

Almost 200 people attended our National Action Agenda Symposium on January 25-26. Its focus included the six action recommendations devised by subject matter experts nationwide during the past year, along with a preview of how work will begin at our first implementation site in the months ahead.

The agenda was chock-full of important sessions led by world-class presenters, with a high level of engagement by attendees over the event’s two days. Please take a look at the “flipbook” program, speaker bios, action recommendations, recordings, and other information from this unique, interactive event. Learn more >> 

View the Program
Biden Op-Ed

August 17 - UNIFY Meeting

we will review the ONC eConsent Discovery Workshop that’s taking place today at noon.

Watch the Recording!

August 10 - UNIFY Meeting

Courtney Baldridge from U.S. Aging lead this UNIFY session and discussed the data sharing and interoperability challenges facing the aging population in the US. Many of the issues are similar to the ones that UNIFY has been exploring over the past several years, but are even more complex given the healthcare, social care and equity issues facing the aging population.

Watch the Recording!

July 27 - UNIFY Meeting

Brian Handspicker reported on the recent CMS Gravity and National Directory Connectathons with colleagues from MayJuun, Open City Labs and Zane Networks. He also led a discussion regarding the impact and implications for UNIFY and data sharing altogether.

View the Slides
Watch the Recording!

Consent Utility Update

Many people have been on this project and are working towards preparing proof of concept demonstration projects to develop, test and pilot the Consent Utility Concept. Interest, engagement and commitment in this work has been growing steadily among a wide variety individuals, communities and organizations across the U.S. While we are continuing to develop adequate resources to support this ambitious, multi-year program we feel it is an appropriate time to bring folks together to make introductions, provide an update and outline our current plans and timelines.

View the Slides
Watch the Recording!

Latest blog by Daniel Stein

SOCI’s latest publication, "Modernizing Consent To Advance Health and Equity," is the culmination of several months of examination of consent-related policies and practices across the U.S., along with numerous interviews with organizational leaders and subject-matter experts; a review of relevant literature, research and resources; and other activities designed to provide information and insights about consent processes in the U.S. today. The subtitle of the report tells the tale: “A National Scan of Key Technologies, Legal Issues and Promising Practices.”

Read the blog!

Project Unify Webinar

This demo was created for a Project Unify user story in which a client, Sarah Thomson, is scheduled to check into a homeless rehab facility and is required to take a COVID survey. Having exercised her 42 CFR Part 2 rights to not share her substance use disorder with anyone, including her primary care provider, the problem is how to alert the rehab center of her potential COVID infection without revealing her substance use disorder. The Community Infectious Disease Alerts Service is used to aggregate her rehabilitation community with many other communities to share (subscription) her COVID status (with appropriate consent) without compromising her sensitive information.

Learn more!

Opioid Use Disorder Playbook  

Overshadowed by the Covid-19 pandemic, another public health crisis continued to grow in our country last year. Indeed, drug overdose deaths in the U.S. rose by almost 30% in 2020, hitting the highest number (93,000) ever recorded, according to data recently released by the Centers for Disease Control and Prevention. The opioid epidemic has long been a concern – and a priority – for the National Interoperability Collaborative, which is what led us to produce the NIC Opioid Use Disorder Prevention Playbook. This unique publication shines a spotlight on the critical role that prevention should play in addressing the epidemic, including strategies, or “plays,” that communities can replicate or adapt for real-time use. The playbook derives from the efforts by practitioners, researchers and policy-makers to “get upstream” of this national disaster, in addition to providing treatment and saving lives.

View the Playbook

National Action Agenda Symposium

Almost 200 people attended our National Action Agenda Symposium on January 25-26. Its focus included the six action recommendations devised by subject matter experts nationwide during the past year, along with a preview of how work will begin at our first implementation site in the months ahead.

The agenda was chock-full of important sessions led by world-class presenters, with a high level of engagement by attendees over the event’s two days. Please take a look at the “flipbook” program, speaker bios, action recommendations, recordings, and other information from this unique, interactive event. Learn more >> 

View the Program
Biden Op-Ed

Project Unify

Project UNIFY participants meet most Wednesdays, starting at 4:00 PM EST. Our conversations currently focus mostly on Consent and related topics, including: care coordination, the social determinants of health, standards, open-sourcing, legal/governance issues, ethical data access/usage, and implementation planning.

Contact Daniel Stein if you would like to join one of the Project Unify workgroups or participate in the weekly Project Unify meetings.

Spotlight

Listen to SOCI President Daniel Stein discuss the critical role of consent – and much more – in “The Dish” podcast from Point of Care Partners.

Access it here >>

Get Connected

      

Activity

Anik Chawla is now a member of The NIC Collaboration Hub
Sep 20
Hub Admin posted a video in Project Unify/CSU
Sep 9
Hub Admin posted a video in Project Unify/CSU
Sep 6
Suzanne Heritage is now a member of The NIC Collaboration Hub
Sep 2
More…