Modernizing Consent Webinar

On December 17, Stewards of Change Institute and the Linux Foundation for Public Health hosted the Modernizing Informed Consent to Advance Health and Equity webinar and provided in-depth review and discussion of the report. View the Slides »»

Project Unify: Advancing Interoperability

Project Unify is an advanced development project of SOCI and NIC. It is exploring the use of existing and draft standards to implement secure information sharing and interoperability across healthcare, behavioral health, human services and other domains (education, child welfare, etc.) that encompass the social determinants of health and well-being.

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January 11 - UNIFY Meeting

Our first meeting of 2023 featured Ken Salyards, Information Technology Specialist, Administration for Children & Families/DHHS and Michelle Zancan, Zane Consulting. They presented their work focused on the Operational Data Hub (ODH) development and implementation within a few jurisdictions. The solution shown is a modular, FHIR compliant solution for managing complex case plans for individuals as they engage with multiple organizations and agencies across the healthcare, social service, mental/behavioral health, and public health domains. This person centric tool facilitates engagement, assessment, care coordination, care planning, modular referral, data analytic, and reporting features with API integration capabilities to inform these features.

Watch the Recording!

November 30 - UNIFY Meeting

 David Lowe-Robertson covered the principles of consent as applied to the journey of secure information sharing from its humble beginnings in central Scotland as a practical platform for enabling information sharing between health and social care professionals to being an integral part of best practice across the UK. 

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November 7 - UNIFY Meeting

Evelyn Gallego, CEO EMI Advisors provided an in depth review of Gravity and plans for next steps with HL7, Civitas, Pilot testing, and affinity groups.

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November 2 - UNIFY Meeting

Hans Buitendijk, David Bucciferro, and Michael Saito participated from EHRA and provided an overview of the Association and shared some emerging and innovative trends regarding electronic records. The group explored the intersection between electronic healthcare records and the requirements for socialcare and other human service organizations as they support whole person care, and better data sharing and interoperability.

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October 12 - UNIFY Meeting

Presenter Amit Trivedi, Senior Director, Informatics & Health IT Standards at HIMSS. Amit reviewed his role leading HIMSS’ interoperability strategy across the health IT standards ecosystem and his liaison role to standards development organizations around the globe. The group discussed collaboration opportunities to advance Consent Utility domestically and globally, featuring the Consent Utility at HIMSS 2023 Innovation Showcase, as well as other initiatives focused on integrating social drivers of health and wellness.

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September 28 - UNIFY Meeting

The session focused on two discussions 1) restarting a NIC/UNIFY demonstration to share information between homelessness and healthcare (and others). This builds off previous demonstration that UNIFY members built in 2020 and 2021. 2) Discussion about the Executive Office of the President's request of SOC Institute to provide recommendations for improving integration of Social Determinants into the National Action Plan that EOP is charged with developing for the nation.

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September 7 - UNIFY Meeting

Kiip is a vital document management platform for individuals and the organizations that serve them. Kiip provides a free, safe, and simple way for individuals to keep, manage, and share their personal vital documents while simultaneously offering organizations a portal to have interactive data rooms with their clients enabling faster and higher success applications for benefits and services. Kiip is a Public Benefit Corporation and Certified B Corporation mission-driven to reduce administrative burdens for at-risk, vulnerable, and marginalized populations.

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Consent Utility Update

Many people have been on this project and are working towards preparing proof of concept demonstration projects to develop, test and pilot the Consent Utility Concept. Interest, engagement and commitment in this work has been growing steadily among a wide variety individuals, communities and organizations across the U.S. While we are continuing to develop adequate resources to support this ambitious, multi-year program we feel it is an appropriate time to bring folks together to make introductions, provide an update and outline our current plans and timelines.

View the Slides
Watch the Recording!

Latest blog by Daniel Stein

SOCI’s latest publication, "Modernizing Consent To Advance Health and Equity," is the culmination of several months of examination of consent-related policies and practices across the U.S., along with numerous interviews with organizational leaders and subject-matter experts; a review of relevant literature, research and resources; and other activities designed to provide information and insights about consent processes in the U.S. today. The subtitle of the report tells the tale: “A National Scan of Key Technologies, Legal Issues and Promising Practices.”

Read the blog!

Project Unify Webinar

This demo was created for a Project Unify user story in which a client, Sarah Thomson, is scheduled to check into a homeless rehab facility and is required to take a COVID survey. Having exercised her 42 CFR Part 2 rights to not share her substance use disorder with anyone, including her primary care provider, the problem is how to alert the rehab center of her potential COVID infection without revealing her substance use disorder. The Community Infectious Disease Alerts Service is used to aggregate her rehabilitation community with many other communities to share (subscription) her COVID status (with appropriate consent) without compromising her sensitive information.

Learn more!

Opioid Use Disorder Playbook  

Overshadowed by the Covid-19 pandemic, another public health crisis continued to grow in our country last year. Indeed, drug overdose deaths in the U.S. rose by almost 30% in 2020, hitting the highest number (93,000) ever recorded, according to data recently released by the Centers for Disease Control and Prevention. The opioid epidemic has long been a concern – and a priority – for the National Interoperability Collaborative, which is what led us to produce the NIC Opioid Use Disorder Prevention Playbook. This unique publication shines a spotlight on the critical role that prevention should play in addressing the epidemic, including strategies, or “plays,” that communities can replicate or adapt for real-time use. The playbook derives from the efforts by practitioners, researchers and policy-makers to “get upstream” of this national disaster, in addition to providing treatment and saving lives.

View the Playbook

National Action Agenda Symposium

Almost 200 people attended our National Action Agenda Symposium on January 25-26. Its focus included the six action recommendations devised by subject matter experts nationwide during the past year, along with a preview of how work will begin at our first implementation site in the months ahead.

The agenda was chock-full of important sessions led by world-class presenters, with a high level of engagement by attendees over the event’s two days. Please take a look at the “flipbook” program, speaker bios, action recommendations, recordings, and other information from this unique, interactive event. Learn more >> 

View the Program
Biden Op-Ed

Project Unify

Project UNIFY participants meet bi-weekly on Wednesdays, starting at 4:00 PM EST. Our conversations currently focus mostly on Consent and related topics, including: care coordination, the social determinants of health, standards, open-sourcing, legal/governance issues, ethical data access/usage, and implementation planning.

Contact Daniel Stein if you would like to join one of the Project Unify workgroups or participate in the weekly Project Unify meetings.


Listen to SOCI President Daniel Stein discuss the critical role of consent – and much more – in “The Dish” podcast from Point of Care Partners.

Access it here >>

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