Welcome to Project Unify

Project Unify is an advanced, cross-industry and cross-sector development project of Stewards of Change Institute and its National Interoperability Collaborative (NIC). The project is exploring the use of existing and draft standards to implement secure information sharing and interoperability across healthcare, behavioral health and human services, as well as other domains (education, child welfare, etc.) that encompass the social determinants of health and well-being for individuals, families and communities. Read more >>
 
Weekly Meetings & Project Unify Workgroups

Please contact Amanda Taylor if you would like to join one of the Project Unify workgroups (highlighted in blue in the navigation bar above) or participate in the weekly Project Unify meetings. 

View November 10 Meeting Notes

A Top Priority for SOCI: Driving Progress on Consent

Stewards of Change Institute strongly believes that modernizing processes for providing informed consent – which are currently highly siloed and paper-based – is critically important for a variety of reasons. Those include enhancing efficiencies, lowering costs and improving outcomes, as well as empowering disadvantaged populations and remediating socioeconomic and racial disparities. As a consequence, we are conducting a variety of projects that explicitly aim to drive significant progress on consent, including a major new report on consent processes nationwide. Download the report >>

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 Project Unify Concept Framework

 

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Project Unify Overview of Demos

Project Unify proofs-of-concepts technical demonstrations are driven by the requirements identified by the various user stories that are articulated in the Thomson family Scenario. The user stories explore various real-world challenges faced by members of this hypothetical family and can be extrapolated more broadly to other under-resourced, under-served vulnerable individuals, families, households, and populations. We have increased the complexity of each of demos to include more components that will impact interoperability and the information that needs to be exchanged. Future demonstrations will include many of the same systems, but also incorporate information from school systems, child welfare systems, legal services, and/or the justice system (courts). Click on each demo below to learn more.
 

The Community Infectious Diesease Alerts Service (CIDAS) Demo 

The Community Infectious Diesease Alerts Service (CIDAS) is an attempt to address privacy issues across a broad range of communities when we need to exchange sensitive information between systems (with appropriate consent). This information could include homeless status, substance use, mental health challenges, and health conditions. The communities could include homeless shelters, rehab centers, assisted-care condominium complexes, schools, universities, corporate campuses, churches, or even tight-knit social clubs. So, when a community has a vested interest in being alerted if a community member becomes ill, how can it be alerted without revealing sensitive data in the process?
 
This following demo was created for a Project Unify user story in which a client, Sarah Thomson, is scheduled to check into a homeless rehab facility and is required to take a COVID survey. Having exercised her 42 CFR Part 2 rights to not share her substance use disorder with anyone, including her primary care provider, the problem is how to alert the rehab center of her potential COVID infection without revealing her substance use disorder. The CIDAS is used to to aggregate her rehabilitation community with many other communities to share (subscription) her COVID status (with appropriate consent) without compromising her sensitive information.
 

 

Other Project Unify Demos 

Homeless SDoH Housing Referrals

Single Parent Social Determinants of Health

Project Unify Demo Webinar and Homeless Mgt.

 

2020 Collection of Project Unify User Stories

The 2020 collection of Project Unify User Story summaries have been released! Each summary explores a particular challenge in cross-domain interoperability and integration. The entire series follows the Thomson family through the trials and tribulations of their difficult lives, and the community and societal help they need to survive. Each story has been or will be developed in more complete detail as needed for demonstrations. (For example, the 2019 MITA-TAC Adult Opioid Story was fully developed as a detailed, five-page user story.) View the summaries >> 

 

Latest Resources

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Design objectives for a 'minimally viable ethics': ensuring agency and accountability in data exchange

Hi there – I can't make the call today so I'm sharing this summary of months of dialogue and discovery. Assuming that "Do no harm" should be a first principle to guide this work, there are important ethical consideration that are NOT fully addressed by topics of security, regulatory compliance, or even traditional notions of "privacy" and consent. This is especially true given the prospect of integrating complex systems in ways that can collapse contexts and make possible new, unanticipated…

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1 Reply · Reply by Daniel Stein Aug 19, 2020
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