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Administrative Simplification Provision of HIPAA
The Administrative Simplification provisions of the Health Insurance Portability and Accountability Act of 1996 (HIPAA, Title II) contained provisions that required the Federal Department of Health and Human Services to establish national sta
Pre-Reading - Policy Context and Consideration
Background, context and considerations for expediting the Consent Learning Lab discussions and Interactive Workshop activities
Procuring Interoperability
Procuring Interoperability: Achieving High-Quality, Connected, and Person-Centered Care, released by The National Academy of Medicine (NAM) and the Gordon and Betty Moore Foundation.
As medical knowledge, diagnostic tools, and treatment options
Consent Scan Final Report
Modernizing Consent to Advance Health and Equity
A NATIONAL SURVEY OF KEY TECHNOLOGIES, LEGAL ISSUES AND PROMISING PRACTICES
In early 2021, the Stewards of Change Institute (SOCI) held an online symposium, in partnership with the Stanford Unive
Welcome Letter
We’re looking forward to seeing you at the first national eConsent Learning Lab on Monday, April 17. We’ll be meeting in West Building, Level 2, Adler C (CC24C). We’ve scheduled time for networking and coffee from 9 to 10 a.m., and the session will r
Read more…Agenda, Facilitators, Registrants
Our agenda, as well as a list of breakout facilitators and scribes, and a full list of all registered participants can be found in the attached slide show.
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White House Office of Science & Technology Policy: Community Connected Health Stakeholder Engagement Summary Report
From January through April 2022, the Office of Science and Technology Policy (OSTP), in partnership with the Health Resources & Services Administration (HRSA), solicited stakeholder input on the proposed vision for Community Connected Health through
Read more…Promoting Data Sharing Approaches by The Topos Partnership
This report—as well as the accompanying Toolkit, both produced with generous support from the Data Funders Collaborative—is intended to help communicators talk about and promote a wide range of data sharing, with broad audiences. The goal is to ident
Read more…The Common Impact Data Standard: An Ontology for Representing Impact
CIDS is a standardized way to represent a SPO’s impact model (i.e., definition) and the impact (i.e., effect) their implementation has on its stakeholders. This creates a uniform representation while allowing each SPO flexibility to design an impact
Read more…Arlington County Shared Authorization to Use and Exchange Information
Arlington County's universal release of information form.
Read more…Charting a Course for an Equity-Centered Data System: Recommendations from the National Commission to Transform Public Health Data Systems
The COVID-19 pandemic laid bare the gaps in our public health and health data infrastructure and illuminated the many ways in which they perpetuate vast health inequities. To work toward a modernized health data system, the Robert Wood Johnson Founda
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National Commission to Transform Public Health Data Systems
This paper explains the Commission, the foundational white papers, defines terms, describes the Commission approach, and outlines the guiding principles of a modern, equity-oriented public health data system and what that system does. This includes a
Read more…ACF: Confidentiality Toolkit
Confidentiality Toolkit Preface:
In issuing this updated Confidentiality Toolkit to support state and local data sharing efforts, we hope to bring greater clarity to the rules governing confidentiality in programs administered by the Administration f
Read more…Self-Sovereign Identity in Healthcare
Lumedic's presentation slides, "Self-Sovereign Identity in Healthcare." Presentation was on August 18 at the Project Unify meeting.
Read more…Integrated Care for Kids: Working with Project Unify To Connect Health and Human Services, Improve Child and Family Outcomes
Stewards of Change Institute is working with the federally funded Integrated Care for Kids (InCK) site in New Jersey to expedite that initiative’s work. Specifically, SOCI is working to develop, test and implement an innovative technical proof-of-con
Read more…One Year into the Pandemic: Implications of COVID-19 for Social Determinants of Health
The Kaiser Family Foundation published an analysis of how COVID-19 has impacted the social determinants of health one year into the pandemic.
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